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7/12/2018 6 Comments

Vitiligo Society Open Day 2018 Follow-Up

Last weekend, we attended the Vitiligo Society Open Day, and what a great day it was! There was an absolutely fantastic turn-out, and I heard that all of the tickets sold out, which is brilliant and shows just how much support there is for people with vitiligo.

I had a VITILIGLOW™ stand at the event, and I was very happy to get a lot of interest in the product. I was excited to be able to meet lots of you and talk about our experiences with vitiligo, plus explain how VITILIGLOW™ can help you feel confident about your body and skin if, like me, you prefer to cover up your depigmented patches.

While I was there, I was also fortunate enough to meet with Lee Thomas (from Fox News), who spoke with me about living with vitiligo and what it’s like for him, being in the spotlight and on camera every day. Lee was just 25 when he first noticed that his skin was changing, and he explained that he covers up his depigmented patches when he’s on television because he wants people to listen to what he’s got to say rather than being distracted by his skin. It’s nothing to do with embarrassment or shame, but more that he doesn’t want vitiligo to take any focus away from the stories he’s reporting, because he understands that the skin condition can be distracting, especially for the thousands of viewers he gets on Fox News!
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Friend of VITILIGLOW™, Joti, was also at the Society Open Day, and it’s always lovely to catch up with her. Joti was on the guest panel at the event, and she spoke about her experiences with vitiligo, alongside other inspiring guest speakers.

Another exciting piece of news discussed at the Open Day is that The Vitiligo Society are launching a new app called Skin Deep, which is FREE to download and use. This is such a fantastic opportunity for people with vitiligo. When I was first diagnosed, there was no social media recognition or digital support available, so this is a positive step towards all of us working together and collaborating to support each other!
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The Skin Deep app offers guided meditation for people dealing with skin conditions. It provides professionally scripted meditations, therapeutic support for dealing with difficult emotions, and will even remind you when you haven’t meditated, so that you don’t forget to take some time out of your busy day and relax with the help of the app. It’s a known fact that meditation can help you gain control of tension by encouraging your body’s calming response. Many people meditate to help them feel less anxious, and to boost serotonin levels. I’m really pleased to hear that the app will soon be available to download – I’ll definitely be giving it a go! Visit http://skindeep.io/ for more information about the release date and the app itself.
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Best wishes,
Polly x
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